Current Advocacy Issues

Current Issues: Sickle Cell Pediatric Mental Health I New Hospital at Parnassus Heights

Urge Congress to Fund Sickle Cell Research & Awareness

As we recover from the pandemic, investments in research and education that address health disparities in underserved communities are more critical than ever. Congresswoman Barbara Lee (D-CA) is leading Congressional efforts to increase awareness and funding for sickle cell disease and sickle cell trait, which disproportionally impacts Black and Latino communities. Ask Congress to support sickle cell research and help ensure access to testing and lifesaving information. Send an email in support:

 

Sickle cell disease is the most common inherited blood disorder in the U.S. At least 3 million people in the U.S. carry the sickle cell trait that can lead to adverse health complications, including 1 in 12 African Americans and 1 in 100 Latinos. Early diagnosis and treatment can slow or prevent some medical complications. Unfortunately, many people don’t know their status. We must ensure everyone has the tools, support, and treatment options needed to prevent and fight sickle cell disease. Ask your Congressmember to support funding for sickle cell research and prevention today (H.Res.494 and H.Res.495).

You can get involved at the local level by joining the Sickle Cell Anemia Awareness of San Francisco 8th Annual KMJ Sickle Cell Warrior Walk on September 11 at the Bayview Opera House

About UCSF Sickle Cell Research & Patient Care 

UCSF Benioff Children’s Hospital in Oakland's Comprehensive Center for Sickle Cell Disease is the largest and most comprehensive program for sickle cell disease in the Western US. Legislation like H.Res.494 and H.Res.495 will enable UCSF to expand research and work with partners to find a cure. 

In collaboration with UC Berkley and UC Los Angeles, UCSF recently launched an early phase, first-in-human trial of CRISPR gene correction therapy for patients with sickle disease using their own blood-forming stem cells for treatment. By focusing on innovative research and offering the latest treatments, UCSF helps sickle cell patients to achieve the best quality of life possible. Read more here

 


Ask Congress to Prioritize Pediatric Mental Health 

Join UCSF and the Children’s Hospital Association in asking Congress to fund children's mental and behavioral health services and support pediatric providers struggling to meet the growing demand for mental health services during COVID-19. Take action using this customizable email template: 

 

The pandemic has exacerbated an alarming trend. Sadly, youth anxiety, depression and suicide are on the rise. Hospitals across the country have seen a 24% increase in mental health emergencies for kids ages 5 to 11 during the pandemic. Thank you for taking action and strengthening mental health services for children and children’s hospitals!

 


Join in Support of the New Hospital at UCSF Parnassus Heights for San Francisco and Beyond

UCSF is planning to build a new hospital and update UCSF's oldest campus to care for more patients, enhance health professional training, advance research, and expand services to the community. Join us to help secure a new future for UCSF Parnassus Heights and a state-of-the-art hospital. 

Sign up to Advocate for the New UCSF Parnassus Heights Hospital

 

Your voice is crucial to help us update our outdated and obsolete facilities, help UCSF meet the state’s hospital seismic deadline in 2030, and ensure there are no delays in critical investments in SF's local workforce and economy. Together, we will advocate for expanded patient care, economic investments, and jobs for San Francisco. 

Thank you for helping UCSF continue its mission of service in Parnassus Heights!